The results below are for "patients", loosely defined as those who are
neither medical doctors nor medical scientists. Separate results for
doctors and scientists will be reported when there is more data.
Total Patients = 668
Last Entries E0176, P0578
Alternative Names
Count Percent
----- -------
I. CFS 8 1.20
J. Myalgic Encephalomyelitis 132 19.76
K. Myalgic Encephalopathy 311 46.56
L. CFIDS 22 3.29
M. Ramsay's 45 6.74
N. Osler's 7 1.05
O. Peterson-Cheney 5 0.75
P. Cheney-Peterson 11 1.65
Q. Nightingale's 22 3.29
R. Darwin's 3 0.45
S. other 88 13.17
Syndrome Syndrome Disease no data
or Disease # % # % # %
---------- ------ -------- -------- -------- ------- -------
188 28.14 371 55.54 109 16.32
Yes No No data
Term Avoidance # % # % # %
-------------- ------ -------- -------- -------- ------- -------
U. fatigue 601 89.97 31 4.64 36 5.39
V. chronic 322 48.20 211 31.59 135 20.21
W. syndrome 376 56.29 163 24.40 129 19.31
X. somatic 526 78.74 46 6.89 96 14.37
Y. benign 571 85.48 35 5.24 62 9.28
Z. neurasthenia 459 68.71 79 11.83 130 19.46
AA. any psychiatrizing 643 96.26 6 0.90 19 2.84
AB. other 138 20.66 0 0.00 530 79.34
Patient responses by country
Number Percent
------ -------
AU 31 4.64
CA 13 1.95
FR 1 0.15
IL 3 0.45
IT 0 0.00
JP 1 0.15
NZ 2 0.30
UK 19 2.84
US 596 89.22
other 2 0.30
------ -------
World 668 100.00
Top Five Choice Names - World Totals
World Patients
Alternative Names - All Names With Votes of 1, 2, 3, 4, or 5
Count Percent
----- -------
I. CFS 60 8.98
J. Myalgic Encephalomyelitis 382 57.19
K. Myalgic Encephalopathy 489 73.20
L. CFIDS 178 26.65
M. Ramsay's 199 29.79
N. Osler's 104 15.57
O. Peterson-Cheney 141 21.11
P. Cheney-Peterson 165 24.70
Q. Nightingale's 125 18.71
R. Darwin's 24 3.59
S. other 150 22.46
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This page is maintained by Roger Burns of Washington, D.C.
E-mail: cfs-news-request@maelstrom.stjohns.edu