ACTION for CFIDS / M.E.

Help to fight for the CFIDS / M.E. community! Promote awareness, campaign for change or make a donation and help to correct misimpressions in the media and by government officials. We’d like to thank our biggest donators from Quantum Code for their support for our cause.

 

Current projects:Awareness Day     Fibromyalgia Petition

Counter the Hysteria!     Change the Name!

Action info:     Action group     Resource Info

Other CFS on-line groups and resources
What additional projects do you think should be promoted? Tell us! Post your suggestions to the Action for CFIDS / M.E.discussion group.

Project:  Fibromyalgia Petition
This petition comes from the book by Dr. Devin Starlanyl, M.D. Follow the link at:

http://www.geocities.com/fibro_myalgie/petitioa.html
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Project:  Awareness Day, May 12
May 12 is International Awareness Day for CFS/CFIDS/M.E. Many support groups and advocacy organizations develop awareness campaigns, focused on this date each year, to educate the media and the public about our illness. See the following May 12 links to see what you and your group can do to promote CFS/CFIDS/M.E. Awareness.

Original May 12 Home Page
CFIDS Association of America: Awareness Day Advocacy
Young PWCs Network: Be Aware! page
Victoria, Australia: Awareness Week activities
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Action Group
The Action for CFIDS / M.E. group is both an e-mail list and a Usenet newsgroup. You can post messages to the participants by sending e-mail to CFIDS-L@MAELSTROM.STJOHNS.EDU or by posting to the newsgroup alt.health.cfids-action . In order to be able to post directly to the group, your address must be registered. You can request registration by sending e-mail to

 

CFIDS-L-REQUEST@MAELSTROM.STJOHNS.EDU
or you can self-register by following the instructions shown on the group’s web page at

 

http://www.cfs-news.org/cfids-l.htm
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Resource Info
Contact Info:     Government   Media   Patient groups   U.S. CongressCFIDS Association of America:     C-ACT Program     Advocacy primer

RESCIND:     Home page     May 12 page

Other action links
L.A. Times, Feb. 23, 1999
N.Y. Times, Nov. 8, 1998
L.A. Times, Feb. 27, 1999
San Francisco Chronicle, Feb, 28, 1999
Wall Street Journal Blasts CFS Again
Boston Globe boosts validity of CFS
Advocacy Resources – Chronic Fatigue Syndrome – Net Links
May 12 — International Awareness Day
Michelle Akers
Akers Battles On — Debilitating disease can’t thwart veteran U.S. soccer superstar
CFS research funds
National Fibromyalgia Awareness Campaign
National ME/FM Action Network
CFIDS LTD Insurance Litigant Seeks Assistance
CFS Coordinating Committee Bias
WECAN, Inc. – Worldwide Electronic CFIDS/M.E. Action Network
WECAN’s Awareness Page – How you can help

Children in danger
BRAME
Michelle Akers: Warrior With A Double-Edged Sword – Chronic Fatigue Syndrome – 7/21/99
Why can’t Kylie go Home?
May 12th
Rest-a-thon
read the Report
IG Finds CDC Misused CFIDS Research Funds
here to read the full report!
“Misspending of CDC Funds”
http://www.co-cure.org/gao.htm

Other CFS on-line groups and resources
Main CFS discussion group    (focuses on health issues)
CFS / M.E. Web page
LATEST NEWS about CFS — from the publisher of CFS-NEWS
CFS Frequently Asked Questions document