ACTION for CFIDS / M.E.

Help to fight for the CFIDS / M.E. community! Promote awareness, campaign for change, and help to correct misimpressions in the media and by government officials.

Current projects:

Awareness Day     Fibromyalgia Petition

Counter the Hysteria!     Change the Name!

Action info:     Action group     Resource Info

Other CFS on-line groups and resources

What additional projects do you think should be promoted? Tell us! Post your suggestions to the Action for CFIDS / M.E. discussion group.

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Project:  Fibromyalgia Petition

This petition comes from the book by Dr. Devin Starlanyl, M.D. Follow the link at:

http://www.geocities.com/fibro_myalgie/petitioa.html

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Project:  Awareness Day, May 12

May 12 is International Awareness Day for CFS/CFIDS/M.E. Many support groups and advocacy organizations develop awareness campaigns, focused on this date each year, to educate the media and the public about our illness. See the following May 12 links to see what you and your group can do to promote CFS/CFIDS/M.E. Awareness.

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Action Group

The Action for CFIDS / M.E. group is both an e-mail list and a Usenet newsgroup. You can post messages to the participants by sending e-mail to CFIDS-L@MAELSTROM.STJOHNS.EDU or by posting to the newsgroup alt.health.cfids-action . In order to be able to post directly to the group, your address must be registered. You can request registration by sending e-mail to

CFIDS-L-REQUEST@MAELSTROM.STJOHNS.EDU

or you can self-register by following the instructions shown on the group's web page at

http://www.cfs-news.org/cfids-l.htm

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Resource Info

Contact Info:     Government   Media   Patient groups   U.S. Congress

CFIDS Association of America:     C-ACT Program     Advocacy primer

RESCIND:     Home page     May 12 page

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Other action links

  • L.A. Times, Feb. 23, 1999
  • N.Y. Times, Nov. 8, 1998
  • L.A. Times, Feb. 27, 1999
  • San Francisco Chronicle, Feb, 28, 1999
  • Wall Street Journal Blasts CFS Again
  • Boston Globe boosts validity of CFS
  • Advocacy Resources - Chronic Fatigue Syndrome - Net Links
  • May 12 -- International Awareness Day
  • Michelle Akers
  • Akers Battles On -- Debilitating disease can't thwart veteran U.S. soccer superstar
  • CFS research funds
  • National Fibromyalgia Awareness Campaign
  • National ME/FM Action Network
  • CFIDS LTD Insurance Litigant Seeks Assistance
  • CFS Coordinating Committee Bias
  • WECAN, Inc. - Worldwide Electronic CFIDS/M.E. Action Network
  • WECAN's Awareness Page - How you can help
  • Children in danger
  • BRAME
  • Michelle Akers: Warrior With A Double-Edged Sword - Chronic Fatigue Syndrome - 7/21/99
  • Why can't Kylie go Home?
  • May 12th
  • Rest-a-thon
  • read the Report
  • IG Finds CDC Misused CFIDS Research Funds
  • here to read the full report!
  • "Misspending of CDC Funds"
  • http://www.co-cure.org/gao.htm

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    Other CFS on-line groups and resources

  • Main CFS discussion group    (focuses on health issues)

  • CFS / M.E. Web page

  • LATEST NEWS about CFS -- from the publisher of CFS-NEWS

  • CFS Frequently Asked Questions document

    • Back to the Top

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    This page is maintained by Roger Burns of Washington, D.C.
    E-mail: cfids-l-request@maelstrom.stjohns.edu