General example:
To subscribe, send the command
SUB (listname) YourFirstName YourLastName
to the particular LISTSERV where the list is based;
but to post messages for the whole group to read, send to the
list's address.
Specific example:
To join the list CFS-L which is based at LISTSERV@listserv.icors.org,
Ms. Sally Forth would subscribe by sending the command
SUB CFS-L Sally Forth
to the address LISTSERV@listserv.icors.org, but to post messages for
the whole group to read, she would send to the address
CFS-L@listserv.icors.org.
For a more extensive discussion about mailing lists and LISTSERV, see the CFS Network Help file. To obtain it, send the command GET CFS NET-HELP as an e-mail message to address LISTSERV@listserv.icors.org, or via web browse to http://www.cfs-news.org/net-help.htm#LISTS.
The CFS-NEWS Electronic Newsletter is issued between 1 and 4 times each month and focuses on medical issues about chronic fatigue syndrome. CFS-NEWS publishes timely reports on current research, medical conferences and medical publications. The newsletter has over 5,000 readers on Internet and is followed by many doctors and patients. It is also distributed through the CFS echo on Fidonet, a widely accessible network of BBSs. To get an e-mail subscription, send a command in the form of
SUB CFS-NEWS YourFirstName YourLastName
as an e-mail message to the address LISTSERV@listserv.icors.org.
Back issues of CFS-NEWS can be found by web, e-mail and ftp. On the web visit http://listserv.icors.org/archives/cfs-news.html. For instructions on how to obtain CFS-NEWS archives by e-mail, send the command GET CFS-NEWS INDEX as an email message to the address LISTSERV@listserv.icors.org. FTP archives can be found at ftp.uci.edu, directory med-ed/cfs/.
Listname: CFS-L (linked to the alt.med.cfs newsgroup)
Title: CFS Patients discussion group
Subscription address: LISTSERV@listserv.icors.org
Subscribers: 2,022 (November 1997) (Many more lurkers)
Web page: http://CFS-L.home.att.net
This is a wide-ranging patients' discussion group on CFS which deals with medical treatments, disability benefits, coping and other issues. Thousands of readers follow the discussion of dozens of active participants who post fifty or more messages on a typical day. The group can be accessed either through Internet e-mail OR through Usenet as newsgroup alt.med.cfs. Most people who have the choice prefer to participate via the newsgroup.
The group has a topics scheme for messages, and rules barring heated arguments ("flames") and commercial advertisements. The topics scheme enables e-mail readers to limit the number of messages that they get. To get a copy of the topics scheme and the rules, by email send the command GET CFS-L RULES to address LISTSERV@listserv.icors.org, or by web browse to http://CFS-L.home.att.net/rules.htm.
If you wish to be able to post messages to the newsgroup alt.med.cfs, you must be a registered participant. To register, send the command in the form of
SUB CFS-L YourFirstName YourLastName
to the address LISTSERV@listserv.icors.org. If you would like to subscribe to the mailing list send that same command as if you were registering for posting to the newsgroup. In addition, after receiving confirmation of your registration, send a command to LISTSERV@listserv.icors.org in the form of
SET CFS-L MAIL
to begin receiving mail from the group. If there is any difficulty, contact the moderator at address CFS-L-REQUEST@listserv.icors.org.
Listname: CFS-WIRE
Title: CFS Newswire service
Subscription address: LISTSERV@listserv.icors.org
Subscribers: 1,769 (November 1997)
This mailing list is an exchange of news articles among editors of newsletters for CFS patient groups. Subscription is open to all. Some articles are posted by other organizations, and by individuals. Timely articles appear irregularly, perhaps several times a month through this mailing list. The service is managed by the CFS/ME Computer Networking Project, which produces the "CFS/ME Electronic Resources" guide (to obtain a copy by e-mail, send the command GET CFS-NET TXT to address LISTSERV@listserv.icors.org).
To get on the CFS Newswire mailing list, send a command in the form of
SUB CFS-WIRE YourFirstName YourLastName
as an e-mail message to the address LISTSERV@listserv.icors.org.
The Newswire's archives are accessible via the web at http://listserv.icors.org/archives/cfs-wire.html. The CFS-WIRE logs can also be retrieved by e-mail. For a list of CFS-WIRE archives send the command INDEX CFS-WIRE as an email message to the address LISTSERV@listserv.icors.org. To retrieve specific logs, note the filename of the month you want and send a command in the form of GET CFS-WIRE LOG(2-digit-year)(2-digit-month) to the LISTSERV address. Example: GET CFS-WIRE LOG9610 returns the log from October 1996.
Listname: ME-NET
Title: Dutch language list for CFS/ME, Fibromyalgia and Lyme
Subscription address: LISTSERV@HEARN.NIC.SURFNET.NL
Subscribers: 261 (November 1997)
Web page: http://www.dds.nl/~me-net
This is Netherlands-based group which discusses and exchanges news about CFS, Fibromyalgia and Lyme Disease. The discussion is conducted mostly in Dutch and distributes postings nearly every day. The group's archives are available via web and gopher, and its web page provides very useful information. To join the group, send a command in the form of
SUB ME-NET YourFirstName YourLastName
as an e-mail message to the address LISTSERV@HEARN.NIC.SURFNET.NL.
The group's archives can be reached via gopher at hearn.nic.surfnet.nl. At the main menu choose "LISTSERVs public archives on HEARN.nic.SURFnet.NL" and then "ME-NET". On web the URL is http://www.dds.nl/~me-net/melist.
Listname: CFS-DOC
Title: CFS discussion for doctors
Subscription address: CFS-DOC-REQUEST@listserv.icors.org
Web page: http://www.cfs-news.org/cfs-doc.htm
This is a private discussion group about CFS. Only medical doctors and doctors of osteopathy may participate. To apply to join, see the registration form or send a request to CFS-DOC-REQUEST@listserv.icors.org.
There is also a doctors information web page at http://www.cfs-news.org/doctors.htm that contains summary advice and medical references about diagnosing and treating CFS.
Listname: CFS-MED
Title: CFS discussion for health professionals
Subscription address: LISTSERV@listserv.icors.org
This is a discussion group for health professionals. The group is not operative yet, and the rules about exactly who may participate have not been developed. Temporary subscriptions are available now until the group will become operative. To join, send a command in the form of
SUB CFS-MED YourFirstName YourLastName
as an e-mail message to the address LISTSERV@listserv.icors.org.
Listname: CFIDS-L (linked to the alt.health.cfids-action newsgroup)
Title: Political advocacy issues for CFS/CFIDS/ME
Subscription address: LISTSERV@LISTSERV.AMERICAN.EDU
Subscribers: 295 (November 1997)
Web page: http://www.cfs-news.org/action.htm
This group discusses political action issues regarding CFS, such as lobbying for: greater awareness by the public and the medical profession (such as by the May 12 campaign); more responsiveness by benefits offices; changing the name of the illness; and other issues. The group can be accessed either through Internet e-mail OR through Usenet as newsgroup alt.health.cfids-action. Most people who have the choice prefer to participate via the newsgroup. The group has documents available that give a background on various issues, and sample letters for writing to officials. The documents and letters can be retrieved by e-mail and web.
SUB CFIDS-L YourFirstName YourLastName
to the address LISTSERV@LISTSERV.AMERICAN.EDU.
If you wish to be able to post messages from the newsgroup alt.health.cfids-action, you must be a registered participant. To register, send the commands in the form of
SUB CFIDS-L YourFirstName YourLastName
SET CFIDS-L NOMAIL
to the address LISTSERV@LISTSERV.AMERICAN.EDU. If there is any difficulty, contact the moderator at address CFIDS-L-REQUEST@LISTSERV.AMERICAN.EDU.
GET CFIDS ACTION
in an email message to the address in an email message to the address LISTSERV@listserv.icors.org. Or go to the group's web page at http://www.cfs-news.org/action.htm.
Listname: CFS-OPEN
Title: Unmoderated CFS Discussion group
Subscription address: LISTSERV@listserv.icors.org
This is an unmoderated CFS patients' discussion group. May contain heated debate. The group can be accessed either through Internet e-mail OR through Usenet as newsgroup alt.med.cfs.open.
If you wish to be able to post messages to the newsgroup alt.med.cfs.open, you must be a registered participant. To register, send the command in the form of
SUB CFS-OPEN YourFirstName YourLastName
to the address LISTSERV@listserv.icors.org. If you would like to subscribe to the mailing list send that same command as if you were registering for posting to the newsgroup. In addition, after receiving confirmation of your registration, send a command to LISTSERV@listserv.icors.org in the form of
SET CFS-OPEN MAIL
to begin receiving mail from the group. If there is any difficulty, contact the moderator at address CFS-OPEN-REQUEST@listserv.icors.org.
Listname: CATHAR-M
Title: Catharsis Magazine
Subscribers: 1,001 (November 1997)
Subscription address: LISTSERV@listserv.icors.org
This is a monthly humanities magazine of personal health, intellect and creativity for the CFS/CFIDS/ME community. The magazine has been temporarily suspended until a new editor has been found.
To get on the Catharsis mailing list, send a command in the form of
SUB CATHAR-M YourFirstName YourLastName
as an e-mail message to the address LISTSERV@listserv.icors.org.
Listname: CFS-FILE
Title: CFS-FILE database of information files
Subscribers: 426 (November 1997)
Subscription address: LISTSERV@listserv.icors.org
This is a file database containing many medical articles, newsletters, etc. about or relating to CFS. The files can be obtained by e-mail by sending commands to the address LISTSERV@listserv.icors.org. To get a list of current files available, send the command GET CFS-FILE FILELIST to that address. To retrieve specific files, note the filenames on the FILELIST and then send a command in the form of GET (filename1) (filename2) to the LISTSERV address (each file has a two-part name). Example: GET CFS FAQ
To be notified of newly added files in the future, join the notification list by sending a command in the form of
SUB CFS-FILE YourFirstName YourLastName
as an email message to the address LISTSERV@listserv.icors.org.
For a more detailed discussion of the CFS-FILE fileserver, see the CFS Network Help file (to obtain a copy, send the command GET CFS NET-HELP as e-mail to LISTSERV@listserv.icors.org). Temporarily the CFS-FILE archives are not accessible via the web.
Listname: CFS-D
Title: CFS-D file database
Subscription address: LISTSERV@HEALTH.STATE.NY.US
This file database is similar to the CFS-FILE fileserver described above, however it has fewer files. CFS-D contains individual back-issues of CFS-NEWS, some older articles, and special files used by the CFS Patients Discussion Group.
To get a listing of all available files, send the command GET CFS-D FILELIST as e-mail to the address LISTSERV@HEALTH.STATE.NY.US. To retrieve specific files, note the filenames on the FILELIST and then send a command in the form of GET (filename1) (filename2) to the LISTSERV address (each file has a two-part name). Example: GET CFS-NEWS 045
To be notified of newly added files in the future, join the notification list by sending a command in the form of
SUB CFS-D YourFirstName YourLastName
as an email message to the address LISTSERV@HEALTH.STATE.NY.US.
For a more detailed discussion of the CFS-D fileserver, see the CFS Network Help (to obtain a copy, send the command GET CFS NET-HELP as e-mail to LISTSERV@listserv.icors.org).
Listname: CO-CURE
Title: CFS/FM information exchange
Subscription address: LISTSERV@LISTSERV.NODAK.EDU
Subscribers: 1,341 (October 1999)
Web page: http://www.co-cure.org/
The name "Co-Cure" stands for "Co-operate and Communicate for a Cure." The mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness commonly referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM). To join the CO-CURE mailing list, send a command in the form of
SUBSCRIBE CO-CURE (FirstName) (LastName)
as an e-mail message to the address LISTSERV@LISTSERV.NODAK.EDU.
Listname: CFS-Y
Title: CFS Youth Discussion group
Subscribers: 113 (November 1997)
Subscription address: LISTSERV@listserv.icors.org
This group is for young people age 25 and under who have CFS/CFIDS/ME. To join, send a command in the form of
SUB CFS-Y YourFirstName YourLastName
as an e-mail message to the address LISTSERV@listserv.icors.org.
See also YPWCnet at http://www.ypwcnet.org and the Children and CFS page at http://www.bluecrab.org/health/sickids/sickids.htm
Listname: CFS-20s
Title: 20-somethings CFS discussion
Subscription address: LISTSERV@listserv.icors.org
Web page: http://members.wbs.net/homepages/c/f/i/cfids/cfs20s.html
CFS-20s is for 20-somethings with CFIDS/CFS/ME, their spouses or significant others, and those with CFS related conditions. To subscribe send a message to LISTSERV@listserv.icors.org that reads:
subscribe CFS-20s (YourFirstName) (YourLastName)
To contact the list owners, email cfsowner@nbnet.nb.ca.
Listname: CFS-Q
Title: Gay/Lesbian/Bisexual CFS/ME discussion
Subscription address: majordomo@tertius.net.au
Web page: http://www.tertius.net.au/lists/cfs-q
CFS-Q is a mailing list for people with CFS/CFIDS/ME, FMS, MPS, or any other related illness like MCS who are gay, bisexual, transgendered or anything else that isn't garden-variety hetrosexual. Not managed using LISTSERV, to subscribe send a message to majordomo@tertius.net.au that reads:
subscribe cfs-q
Do not add any additional information such as your name. To contact the list owners, email cfs-q-owner@tertius.net.au.
Listname: CFS-GLB
Title: Gay/Lesbian/Bisexual CFS/ME discussion
Subscription address: majordomo@queernet.org
Web page: http://www.queernet.org/lists/cfs-glb.html
Formed with the intent to establish an outlet for the discussion of issues facing people in the Gay/Lesbian/Bisexual community who are afflicted with CFS. Those with Fibromyalgia, Multiple Chemical Sensitivities, and Gulf War Syndrome are also welcome. While the list is geared toward the GLB community, it is open to all who are interested. Not managed using LISTSERV, to subscribe send a message to majordomo@queernet.org that reads:
subscribe cfs-glb
Do not add any additional information such as your name. To contact the list owners, email owner-cfs-glb@queernet.org.
Listname: OzME
Title: Australian and New Zealand CFS/ME discussion
Subscription address: majordomo@tertius.net.au
Web page: http://lists.topica.com/lists/ozme
OzME is for people with CFS/CFIDS/ME, FMS, MPS, or any other related illness such as MCS. People who have some interest in these diseases - such as parents, children, spouses and carers - are also very welcome. The focus is on Australia and New Zealand but those outside are also welcome to subscribe. Most of the messages will be related to the Australia/NZ area. Not managed using LISTSERV, to subscribe send a message to majordomo@tertius.net.au that reads:
subscribe ozme
Do not add any additional information such as your name. To contact the list owners, email ozme-owner@tertius.net.au.
Website: http://lists.topica.com/lists/ozme
Listname: MECHAT-L
Title: UK CFS/ME discussion
Subscription address: LISTSERV@LISTSERV.AOL.COM
Web page: http://www.mechat.co.uk
The M.E. Chat list has been created for those of us with M.E. in the UK to discuss items more relevant to UK health and politics, and subjects not always acceptable on the 'big list' CFS-L / alt.med.cfs and share our rather unique British sense of humour. To join the MECHAT-L mailing list, send a command in the form of
SUBSCRIBE MECHAT-L YourFirstName YourLastName
as an e-mail message to the address LISTSERV@LISTSERV.AOL.COM.
Listname: CDN-ME-FM
Title: Canadian ME/FM discussion
Subscription address: LISTSERV@LISTSERV.NODAK.EDU
Subscribers: 88 (November 1997)
This Canadian list has been established with the goal of exchanging Canadian information and support for those with ME and FM. To join the CDN-ME-FM mailing list, send a command in the form of
SUBSCRIBE CDN-ME-FM
as an e-mail message to the address LISTSERV@LISTSERV.NODAK.EDU.
Listname: PWC-INFO
Title: Canadian CFS/ME discussion
Subscription address: PWC-INFO-REQUEST@HOME.EASE.LSOFT.COM
Subscribers: 28 (November 1997)
PWC-Info is a moderated list for Canadians, for discussion specific to the problems of Canadians with M.E., and general to the illness itself. Subscription is by listowner. For information about how to join, write to PWC-INFO-REQUEST@HOME.EASE.LSOFT.COM.
Listname: C-ACT
Title: The CFIDS Association of America's CFIDS Activist Program
Subscription address: c-act@cfids.org
Web page: http://www.cfids.org/c-act.html
C-ACT members serve as the grassroots link between CFIDS lobbyists and members of Congress. Writing one letter, sending one e-mail message or making one phone call can have a positive impact on decisions that affect every person with CFIDS. You'll receive Advocacy Alerts, sample letters and other important information about what's going on in Washington. Join your voice with others to send a clear and consistent message to government officials about the need for a more dedicated national response to CFIDS.
Join by sending your name to c-act@cfids.org.
Listname: WECAN
Title: CFIDS/ME patient advocacy
Subscription address: WECAN-REQUEST@HOME.EASE.LSOFT.COM
Subscribers: 162 (November 1997)
Web page: http://www.community-care.org.uk/wecan
"Meeting place" for WECAN, the Worldwide Electronic CFIDS/M.E. Action Network, an international nonprofit organization for patient advocacy and educating the public about CFIDS/CFS/ME. Subscription is by listowner. For information about how to join, write to WECAN-REQUEST@HOME.EASE.LSOFT.COM.
Listname: SASYFRAS
Title: CFS/ME patient discussion
Subscription address: LISTSERV@HOME.EASE.LSOFT.COM
Subscribers: 165 (November 1997)
Web page: http://www.community-care.org.uk/wecan/sasyfras.html
Patient discussion group about CFIDS/CFS/ME. To join the SASYFRAS mailing list, send a command in the form of
SUBSCRIBE SASYFRAS
as an e-mail message to the address LISTSERV@HOME.EASE.LSOFT.COM.
Listname: CFS-P
Title: Parents of YPWC's discussion
Subscription address: majordomo@tertius.net.au
Web page: http://www.ypwcnet.org/parent
CFS-P is a mailing list for the parents (or caregivers) of young people with CFS/CFIDS/ME, FMS, MPS, or other related illnesses such as MCS. Not managed using LISTSERV, to subscribe send a message to majordomo@tertius.net.au that reads:
subscribe CFS-P
Do not add any additional information such as your name. To contact the list owners, email CFS-P-owner@tertius.net.au.
Website: http://www.tertius.net.au/lists/
Listname: CFS-CARE
Title: Caregivers discussion
Subscription address: CFS-CARE-REQUEST@listserv.icors.org
Caregivers of PWC's discussion. Please note that the discussion group is limited to caregivers of PWC's. To subscribe send a request to CFS-CARE-REQUEST@listserv.icors.org.
Listname: FIBROM-L
Title: Fibromyalgia / Fibrositis discussion
Subscription address: LISTSERV@MITVMA.MIT.EDU
This is an active discussion group for patients and doctors about Fibromyalgia. The group makes some help files available. To get on the FIBROM-L mailing list, send a command in the form of
SUB FIBROM-L YourFirstName YourLastName
as an e-mail message to the address LISTSERV@MITVMA.MIT.EDU.
There is also a separate Usenet newsgroup alt.med.fibromyalgia. (FIBROM-L is no longer gated to alt.med.fibromyalgia.)
To find Fibromyalgia resources on the web, browse to http://www.cfs-news.org/fibro.htm.
Listname: immune
Title: immune discussion group
Subscription address: majordomo@balaca.com
Web page: http://www.immuneweb.org/
The "immune" group is a forum for a wide-ranging discussion about immune dysfunction. Moderator Cyndi Norman founded the group with the belief that CFS, multiple chemical sensitivities, and other similar conditions may have common disease processes and perhaps common treatments. The group's messages are archived at an ftp site. Not run with LISTSERV, to join the group either go to the webpage at http://www.immuneweb.org/ or send an email to majordomo@balaca.com and in the body of the message write:
subscribe immune
To reach the listowner, send to cyndi@immuneweb.org
Newsgroup: sci.med.immunology
This group is not available as a mailing list, but it provides an excellent, open discussion of immune system issues and diseases. Other newsgroups that also deal with medicine and health are sci.med and misc.health.alternative.
Listname: Gulf War Mailing List
Subscription web form: http://www.gulfwar.org/gwlist.html
Subscription address: grant@ides.com
This group exchanges information about Gulf War veteran issues, mostly about Gulf War Syndrome. Subscribe either at the web form or the e-mail address, shown above. A general resource on Gulf War Syndrome information can be found on the web at http://www.gulfweb.org.
Listname: LymeNet-L
Title: Lyme Disease electronic newsletter
Subscription address: LISTSERV@LEHIGH.EDU
This is a periodic newsletter on Lyme Disease issues. There is a separate discussion group at newsgroup sci.med.diseases.lyme.
To get on the LymeNet-L mailing list, send a command in the form of
subscribe LymeNet-L YourFirstName YourLastName
as an e-mail message to the address LISTSERV@LEHIGH.EDU.
The newsletter has a web page at http://www.lehigh.edu/lists/lymenet-l. There are several other Lyme resources on the web as well at http://www.cfs-news.org/lyme.htm.
[CFS / M.E. Information page] [CFS Frequently Asked Questions] [CFS Quick Index]
Comments regarding this document should be sent to CFS-L-REQUEST@listserv.icors.org.